![]() Something in the back of my mind kept telling me that something wasn't right. After 5 weeks of extreme worry, I was ecstatic at the news that I didn't have Horner's Syndrome.at least, for a couple of days. After 10 minutes, he declared."You definitely don't have Horner's." He told me that I have physiological anisocoria and a drooping eyelid (ptosis) that's just gotten worse with age (I'm 36-years-old). He took photos of my optic nerve, did peripheral vision tests, tested the pressure in my eyes, everything. He did all of this advanced testing with all these machines I had never seen before. After the longest 2 weeks of my life, I arrived at the neuro-ophthalmologist's office. Here we went.2 more weeks of stress/anxiety and worry while waiting for my neuro-opthalmologist appointment. He didn't know for sure, so he referred me to a neuro-opthalmologist who specializes in this kind of stuff. He said my pupils were responding to light normally and it was probably just anisocoria. After a few minutes, he said it's POSSIBLE that it could be Horner's, but he didn't think it was. He did some vision tests, looked in my eyes, took some photos, and dilated my eyes. When I read about the possible causes of Horner's Syndrome, it sent me into weeks of anxiety and worry.I could barely eat while I waited for my first ophthalmologist appointment.Ībout 2 weeks after noticing symptoms, I finally got into my ophthalmologist. After reading this, I immediately started to panic because I remembered noticing I wasn't sweating on the left side of my face at the gym anymore (which had been going on for a few months). The vascular dilation is what was causing my 24/7 bloodshot eye. The first thing that popped up in my search was "Horner's Syndrome." It talked about a drooping eyelid, a small & uneven pupil, lack of sweat on that side of the face, and vascular dilation in that side of the face (though this is a less common side effect). ![]() Everyone says "don't Google symptoms" but Google turned out to be correct in my current situation. A few days later I noticed it hadn't gotten any better, so I started googling symptoms. I figured it was just irritated, or caused by a recent cold I had, so I ignored it. It was bloodshot and my eyelids looked swollen (come to find out, it wasn't swollen, it was just drooping). I also tend to worry a lot, so I needed a definite answer or else I would always have this uneasy feeling in the back of my mind.Ībout 11 weeks ago, I woke up and noticed my left eye looked irritated. Your doctor knows your situation much better than I do, but I just wanted to share my experience. As someone who was recently diagnosed with Horner's Syndrome, I can say that sometimes you have to be your own advocate. Sorry in advance for the long post, but I wanted to share my experience with Horner's Syndrome. I have anxiety so I have trouble letting go of fears, and I never know if I'm overreacting. Would love to hear what you all would do in this situation. I have my son’s 6 month appointment in a few days, and I don’t know if I should I push to have him refer me to another ophthalmologist and demand they do testing for Horner's syndrome, or just trust that everything is okay. The official test to rule it out involves cocaine drops which are apparently hard to come by so it might be hard finding an office to do this test. Still, there is a part of me that is always going to worry unless I know FOR SURE that he doesn’t have this Horner’s syndrome. He also wasn’t concerned, especially after hearing that the ophthalmologist wasn’t concerned. I was still worried so I brought him into his pediatrician's office for a second opinion. This is not the official test to rule out Horner’s syndrome. When I mentioned Horner’s syndrome he said “Well I can see you’ve been googling…” and then put some eyedrops into his eyes to dilate them and then examined them. I can't post a photo of him but the an ophthalmologist said the difference is about 1mm.Īnyways, of course I started freaking out being the person I am, and rushed him to an ophthalmologist who told me he wasn’t worried. It's hard to tell but from photos it looks like my son has had this since birth. My husband seems to have one pupil that's slightly bigger as well, but it's not as noticeable as with our son. It’s fairly common to have this and apparently 15-20% of the population is affected (look up “physiological anisocoria”) but in rare cases it can be caused by something called Horner’s Syndrome, which can sometimes be caused by neuroblastoma. More obvious in dim lighting when the pupils are big. ![]() Both dilate but one is always a little larger. About two months ago when my son was four months old I noticed that he has two different sized pupils.
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